13 Feb, 11

Marking today off as 33% completed. That would be time in hospital only. But here I have tubes coming out of various places. When I leave there will be no tubes. Around my chin is nice and swollen where all the metal tubes protrude so I’m sure the chin will be fat for a while. And the tongue. I can barely move it around it is so sore.

Needless to say, another thing about this stay is that I can’t speak. Not until the tubes are taken out and the trachea hole closed up will I be able to resume using my voice box. Until then, I’ve got a writing tablet for questions, needs, or to say anything for which body motion won’t due.

Had to get another iv placement yesterday because the first one put in my hand just wasn’t working. Hate it when that happens. One particular nurse is being very unhelpful, trying to push me to do stuff on my own because I’ll be in isolation, required to do those things, like change iv med, suck mucus, change the windpipe inserts and the like.

At least I’ve got a window view, though have heard I’ll be changing rooms tonight.

6 thoughts on “13 Feb, 11

  1. Mother

    Okay. Got that about the change of rooms. Always- there are nurses and there nurses. New “Prayer List” –that Steve gets good care givers. If you discover that you need an advocate (most of us do) let us know. When David had his neck fixed by taking bones from his leg and put as support in his neck, he asked Susan to come and be his advocate. GV is an angel. Hospital personnel work better when someone who cares is watching. Just a thought. Sleep well. Get better.
    Be ready: You and I are going to Mass at 6:45 AM tomorrow, Monday.

  2. Sarah

    Best wishes for a speedy recovery, uncle! I’m sending thoughts of healing your way (and here’s hoping that particular nurse has tomorrow off). Much love,

  3. Stryker Warren jr.

    Fred: Remarkable you are posting while sounding as though you are totally immobile. And the job responsibilities while isolated. . . I hope you have negotiated your hourly rate and that it’s not in violation of the collective bargaining agreement that protects the nursing staff. Did not know there was a “Do it yourself” option to hospital stays. You must tell us how they remove the radioactive seeds, that part is unclear to me and how they dispose of them. (I see this little guy at night looking right and then left, listening for footsteps, and then flushing them down the toilet.) In the meantime, I await your “All clear!” signal so that I may purchase high end chocolate and other delicacies you have missed the past 6 months. Anxious to hear the rad doc is satisfied you have had sufficient beam and now boost to thwart Senor Tumor well into your 90’s and beyond. You will enjoy the chance to say your therapy was “totally rad” and mean it literally and figuratively. We admire you very much and maintain a special place in our thoughts and prayers for you; best to GV for her remarkable stamina too. swjr

  4. Sister Lynda

    May God heal you,
    body and soul.
    May your pain cease,
    May your strength increase,
    May your fears be released,
    May blessings, love,
    and joy surround you.

  5. Susan Forney

    Freddie: I ache for what you must be enduring. Your resolve and endurance is extraordinary and the “do it yourself” nurse a clear reminder of the benefit of a “vocal advocate” in an otherwise impersonal and overtaxed environment. I’d forgotten about overseeing Dave’s surgery and spending a week in the Burn Unit with Pete … what an honor it was to step into the temporary void of self-advocacy and become a fervent vehicle on a singular mission to ensure the best possible standard of care for those we love. I’m also reminded what a gift advocacy is as I witness a truly remarkable friend working tirelessly to ensure, during the final chapter of her husband’s remarkable life, that he is not treated as “just another body” in the course of someone’s work day–but as someone who deserves kindness, compassion and responsible continuity of care as he is moved from one location to another. I remember how another dear friend, who came to my side just hours after my hip surgery, no doubt saved my life (one nurse responsible for 18 patients had no clue I’d all but stopped breathing) … and the cost of being absent an advocate, when that night, left in abject medical neglect I spent the longest night of my life writhing in post-surgical, unmedicated agony. As the time for surgery on my other hip draws near, (which will occur in Asia) I hope to be accompanied by a friend or family member who will act as a vocal and assertive advocate. I’m so very grateful that GV is steadfastly there for you … truly a gift. God speed and lots of love always,


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